Who is included in biomedical research? Views of and challenges for adults with intellectual disability
Maya Sabatello, LLB, PhD is an Associate Professor of Medical Sciences and Co-Director of the Precision Medicine: Ethics, Politics, and Culture Project at Columbia University. She is a former litigator with trans-disciplinary background and extensive experience in national and international policymaking relating to human and disability rights. Dr. Sabatello studies how biomedical technologies, genomic information, and Big Data impact social structures, marginalized communities, and individual rights and health outcomes. Her research program focuses on the ramifications of genetic data in non-clinical settings (e.g., schools) for social, disability and racial justice; the psychosocial impact of genomic data on adolescents and families; and issues of trust, consent, and inclusion of people with disabilities in precision medicine research.
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